Stories of Hope
Behind every story is a parent who kept going. These are their words.
"I thought I was the only parent who felt this — the fear, the helplessness, the constant monitoring. Finding PGF's WhatsApp group at 2am during a hard night changed everything. For the first time, I didn't feel alone."
Priya
Chennai, Tamil Nadu
Parent of a 7-year-old diagnosed with Dravet Syndrome
"The guidance on the Ketogenic Diet from other parents in this community gave us the courage to try it. Our son has been seizure-free for 14 months. I cannot describe what that means to a parent."
Ramesh & Kavitha
Bangalore, Karnataka
Parents of a 9-year-old with drug-resistant epilepsy
"PGF helped us understand that epilepsy surgery was a real option for our daughter. They connected us with resources and other families who had been through it. She had surgery six months ago and is doing beautifully."
Anitha
Mumbai, Maharashtra
Parent of a 6-year-old post-surgery
"As a single father, I was completely overwhelmed. PGF didn't just give me information — they gave me a community of parents who called to check on us, shared meals during hospital stays, and reminded me that I was doing a good job."
Karthik
Coimbatore, Tamil Nadu
Single father of a 5-year-old with Lennox-Gastaut Syndrome
"Our school was completely unprepared when our son first had a seizure there. A teacher panicked and called it a 'fit' in front of his classmates. PGF helped us approach the school and arrange a sensitization session. The change in how the staff treats him now is remarkable."
Meena & Suresh
Hyderabad, Telangana
Parents advocating for school inclusion
"We are Indians living in the UK. Epilepsy support networks here are good, but there was something missing — the cultural understanding, the shared experience of navigating this in an Indian family context. PGF filled that gap."
Divya
London, UK (Chennai-origin)
Parent in the Indian diaspora community
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Your experience could be the story that gives another parent the courage to keep going. We'd be honored to share it — with your permission and in your words.
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